Tuesday, June 2, 2009

Question about Disability

From The Census Project:

Sen. Mel Martinez (R-FL) introduced legislation on May 21 to require the Census Bureau to change the way it collects data on disability in the American Community Survey (ACS). The ACS, launched nationwide in 2005 to replace the traditional census long form, samples roughly 250,000 addresses a month to produce annually updated estimates of the nation's socio-economic characteristics. The "Disability Data Modernization Act" (S. 1127) would replace the current ACS question on disability with "standardized function questions used by medical providers," Sen. Martinez said in announcing introduction of the measure on May 21. The ranking Republican on the Special Committee on Aging said the current question wording "is not meeting its legislative purpose. [With the change], we can better plan for a coordinated, comprehensive, and compassionate system of long-term care which will allow each and everyone of us to live out our lives with dignity and independence." Under Office of Management and Budget (OMB) policy, all data collected in the census, of which the ACS is a part, must be required by federal law, be necessary to administer a federal program or law, or be required to implement the goals of a federal court decision.

S. 1127 specifically directs the Census Bureau to use the Katz Activities of Daily Living (ADL) Index and the Lawton-Brody Instrumental Activities of Daily Living (IADL) to measure extent of disability. The senator described ADLs as "activities essential for self-care" and IADLs as "activities essential to function in the home and community," and said the measures are "two of the most widely accepted and used indices of function by hospitals, researchers, federal agencies and Long-Term Care facilities for 40 years." The bill was referred to the Committee on Homeland Security and Governmental Affairs.


So my question: understanding that ADLs and IADLs are "two of the most widely accepted and used indices of function by hospitals, researchers, federal agencies and Long-Term Care facilities for 40 years," are the terms easily understandable by members of the general public?



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